Tuesday, November 5, 2013

Big Steps

As many of you know I have returned to work for now. We have to do what we have to in order to make ends meet right?

Well with this we've had major changes.....

Last Friday I had off so we did our test pilot and put the kiddo on the bus for the very first time ever. If you follow my page at all you'll know it was a blazing success!! For those of you who don't, despite all the anxiety on everyone's part, we prepped and planned very well. He came off the bus grinning ear to eat and saying that it was fun!

The bus he rides on is a special designation bus. It only has special needs kiddos from his school. That's it. No mixed population. So we thankfully get to avoid all the bs that goes with bullies. Since he lives on the other side of town and the school he attends isn't his home school (the same is true for the others on the bus) we also lose any weird stigma. These kids simply live elsewhere.

So I get off work at 4 now. I think this bus thing could work since his official drop off time is 4:14 pm. Even if he beats me home it won't be by more than 5 minutes. So begins our next round of prep. Getting him in the door without panicking if I'm not here.

Before you get all sweaty and upset with me, know that he can definitely handle it. He manages just fine when I'm sleeping till noon on lazy Saturdays. He is actually really excited over the prospect of being here by himself and proving some responsibility. He can manage the door locks and playing a game or watching TV till I get home. Even if he has the munchies he can also get himself a snack. He wants to prove he can stay home alone while I go to the store. The jury might stay out on that one for a long while but we'll see.

It's all good.

So I've been working with him on unlocking the door and what he needs to do when he gets home. His BSC has made some cards at my request to walk him through what to do if he beats me home. He's getting a key. His teachers, BSC, and Grandma are all on board and ready to test this out this week (Grandma will be meeting him here at home this first week, helping to walk him through what to do, while I time myself home).

Sunday night, plan in place, start date in T+2 days and it hit me.

I have no house phone.

What if he needs to call? What if he can't get in? What if he just needs a mommy eta time check?

Fudge.

Insert two frantic days of 'now what?!?!' here.

I've never had a house phone so I don't even know if these lines are any good. But I investigate anyway. $10 phone services exist right?

Wrong...

Upon closer inspection they aren't really $10 and some even interfere with home security systems. Well that doesn't help. I'd need a real, traditional phone line put in.

Mobile phone? I do have access to a new phone from a friend. Perfect.

And.... Holy crap are the plans expensive. Even the prepaid!! I can't add him to my line very easily because I have the ancient nonexistent plan from Verizon that gives me unlimited data that I will never give up. (Over my dead body!) I am still unclear on if it could be added to the iPad, also Verizon... Still investigating.

All this stuff takes too much time!! I need something ASAP!!

So I start looking at apps. Google voice (which I currently use for voice mail), Talkaphone, Skype...

None will work because they won't let me call myself. Ugh!!!! I went to bed very frustrated last night. So I sent out a call for help.

I got a lot of suggestions. I got some offers of free phones. Nothing that would really quite work. And some I just couldn't implement fast enough. (Phone offers are on standby....)

Then a dear friend (you may know him from Blogging Lily) clued my blonde self in to a brilliant idea.

Use a separate Skype account.

GENIUS!!!

Who doesn't have several email addresses sitting around collecting dust? I sure do!

So I set one up for him (I already had one). I gave it a password the kiddo would remember. I logged it in on my laptop. Shazam!!!! It worked! We did a test call to the account I already have and the kiddo nearly came out of his skin with excitement!

Hmm... Will it go on the iPad? .... I look... Holy crap on toast it will!! So I set it up there. Once again the kiddo's skin peeled off in his excitement.

Wait! The phone! My old phone travels to school with him and he gets it for rewards to make videos or whatever. It basically runs like the iPad so it's usable. Internet over Wi-Fi.... I log it on... It works!!! I think he might have passed out.... ;)

I think we are covered for now.

He's growing up so fast on me.... Please pray for my sanity this week. :D

Tuesday, October 22, 2013

Through the Looking Glass....

I sat there in the office, looking at my doctor, who was just looking at me.

Moments ago he had told me that yes, I do appear to have it, but since I already know and am very self aware, why am I asking him to confirm it?

I didn't have an answer. Why was I seeking the answer from him? I knew the answer, sure. But hearing it is validation right? Or so I thought. It was the other words that hit me: you are self aware, you already know, you seem to have adjusted and coped just fine with it. Oh, and I should seek counseling as it is something that helps everyone.

I wanted to laugh hysterically. Coped well? Adjusted? Managed just fine? Did this guy even know me? I felt a little insulted by his assumptions. Oh, if he only knew....

Yes. I knew it already. I didn't expect to hear it, that wasn't the main reason I was there, but deep down I knew. I didn't really need him to tell me that I was on the spectrum, that I was likely an Aspie.

I knew.

To me there is a genetic component. My son got it from me. Well that explains that then.

Adjusted well?

I guess if you can call a Bachelor's degree, teaching certification and being 2 classes away from a Master's degree "adjusted."

More like "damn lucky to have somehow navigated so blindly through the universe that never understood me or feeling like I ever fit in."

But sure. I adjusted well. (/snark)

I've actually sat on this for about 6 months now. Six months this has been swirling in my brain. I had no idea how to write this. How to put it into words. Until now, I haven't told anyone.

Not my mom. Not my sisters. Not my best friend. Not even Strike. No one.

I was talking to my dear friend over at Mutha Lovin Autism not too long ago about this. She had written an amazing post that really struck a chord with me. You can read it here. She told me that only I can make the decision on where to go with this information. I honestly still don't know. But right now I feel that it needs to be out there. I've sat on it long enough.

Will it bring more understanding? Probably not. Will people look at me differently. Probably. But I have always held to the belief that I will be true to who I am and embrace it.

Over the last 6 months I have thought about many things. Growing up, school, my degrees, relationships... I've had so many struggles that I think would have been less had I known then what I know now. I was fighting against who I was not understanding myself, my emotions, my thoughts. I'm a pretty intense person. On every level... O.o

One relationship stands out when I think back. It was just a few years ago. He was a really great guy, said and did the right things, and things were great. Until they weren't. How much of that was him and how much was me is debatable and not relevant. (It was really about 50/50 anyway.) What is relevant is my own over-reactions to rather simple and insignificant things. I perseverated needlessly on so many things. It became harmful. My own reactions being so strong and sudden and him not possibly able to know where it was coming from, was a huge issue. I still struggle with this today. But not just in general, specific to this relationship. Had I been more self aware at the time to my own thoughts and emotions, I think things would have gone very differently. He will never see this post, as I'm sure he has no idea I write or even have this blog, but to him, I apologize. I was pretty intense, wasn't I? ")

Does it matter? In the long run no. We are both very happy with our current situations, I'm sure. I know I am. What does matter is the ability to have self awareness.

Where am I going with this? Over the last 3 years I've developed this self-awareness. This has helped me tremendously and has trickled down to the kiddo. How? Knowing my own struggle helps me understand and help him through his.

I heard not too long ago that I am a different person that I was a couple years ago. I have made a point of changing how I was in an attempt to make my relationships healthier and stronger. I like this new me. I feel stronger. I feel better. I finally feel like "me." I am conscious of where my limits are and managing myself. I didn't have a name for it, it was just something I knew I had to deal with and work on. It's something I work with the kiddo daily on. He needs to know his and how to work with them. What I haven't figured out yet is my temper and level of intensity... Someday I hope to get there. It's work in progress and I am improving.

Knowing what I do now, so much makes sense. I even sat down to compile a list of things (a running list because I keep thinking of new things) that make sense now when you look at how Asperger's is described (you can find this list in the link above, all apply which threw me through a loop, but I'm just highlighting some here):

Things like head banging in the car. I needed to move, so I'd move. There was something strangely comforting about constantly banging on the back of the seat. (My sisters didn't appreciate it much though...) I craved the motion. I still do. I can rock or swing for hours. I was a very stimmy child, often flapping my hands and being told very sarcastically that I wouldn't make it off the ground by an uncle of mine... :/

I crave pressure. I am one who will sleep with the comforter when it's 100 degrees in the room. I need to feel the weight. I also have to have my feet covered at all times.

I was staring at objects from an early age, just watching them move, trying to figure out how they moved. A few years ago I remember doing this with a Hoberman sphere that my son has. I lost hours to that thing one afternoon.

I had a thing I can only describe as a "scissors feeling when in car." I would cry over this one. Whenever I touched something I felt as though there was some sort of invisible string still tying me to that object that I had to "cut" to release. Then I'd have to cut what I just cut. Then cut again. And again... You get the idea. Eventually I would just cry in frustration.

I am one of the most inflexible people I know. I'm very rigid in how I think and respond. I have a really hard time adjusting to changes in plans, especially when they are last minute. I can easily lash out. Zero to 60 in 2.3 I always say... Once the change is in my head, I'm ok. I can adjust myself after the initial panic, talk myself down, and be ok. I just have to get there first...

I also have to do things in a very specific way. I thrive on routine. Things have to happen at certain times and in certain ways or it throws me off. This morning I accidentally shaved my right leg first... Seems like a small thing but it really messed with me for a while after that.

I have a love of cats. That is likely where my son gets it from. Growing up my world revolved around them. I was convinced for years that I would be a wildlife photographer and go to Africa to photograph them. They are and have been an intense, deep, interest for me. I am very attuned to my kitties.

I have major sensory issues. The biggest one being the feel of my clothing when I'm tired. They just get suddenly uncomfortable. When this happens I get irritable. I even have to take off my watch. I also hate being wet. It is nails on a chalkboard for me.

I have a major need for music at times. It works wonders to regulate my thoughts and emotions. It helps calm me and make sense of chaos around me. If the kiddo is particularly vocally stimmy I will have to pop in my headphones in order to be in the same room. (Which hurts to say.) Many of you already know of the headphones and music we bought for him for the same reason.

I often live in my own world. I like it there. I feel safe there. Going with that, I prefer to be alone. I'm content to sit by myself undisturbed for long periods of time.

My whole life I have struggled greatly with who I am and where I fit in. I've never really felt I belonged in a sense. I didn't feel like I really had an identity unless I had a label: band member, cheerleader, admin, and eventually mom and teacher. I live by those labels. Without them I am lost.

I often have to rely on my friends in social situations for cues on how to respond to something. I often respond wrong and don't know it or understand why (a big issue in relationships, like the one I already mentioned). The issue here is that I am often seen as cold and unfeeling which is really not accurate at all. I easily offend and alienate people as a result.

As strange as it may sound, I keep certain objects near me at all times. It changes as times goes on but it's pretty consistent. As a result, I carry a large purse... I have a hard time letting go, objects or people.

My closest friends have always been male. I say it's because there is less drama (which is true) but men are often so black and white. This makes them so easy to understand. They also don't really seem to care so much about those minor social things that women pick others apart for.

I've always been very motherly, taking care of people and making sure everything is ok. This usually isn't an issue on a larger scale and it works nicely to counteract those who think I'm cold and unfeeling.

I'm very blunt and have no filter. This is not good in many social situations but over the years I have developed my skill for tact and diplomacy which has helped ease the sting on this one.

Growing up I found it easier to be friends with people older than me and had many adult friends. To this day I have friends who are older than me (as I age this gap closes). I've been told I have an old soul. I can only guess this is where that comes from.

I found it interesting than an intense interest in reading was on the list. I'm an avid reader and am never happier than when I have a book in my hands. My son shares this love of books and we currently have far more books than we have shelves to put them on! He recently came home and told me that the book fair was coming to school and on what day so I wasn't allowed to forget! :)

Appearing shy was also on the list and this one made me smile. Growing up I was often assumed shy because I am also hearing impaired. I would avoid large crowds and when I couldn't, I would be the quiet one in the corner. I would (and still do) avoid going to parties and large gatherings for this very reason. However, around trusted friends I would be completely out of that shell and show my more outgoing side.

I remember a little quirk I had growing up. I would circles around the house for hours. Perfectly content to circle, lost in my own world and thoughts. About 3 years ago now, my son was spotted doing the same and I had received a frantic phone call from my mother who was convinced the kiddo was upset and I needed to come pick him up. He was perfectly content, and I knew he was, but there was no convincing her. (She does not remember this but there was so much going at that time that it probably didn't stand out to her.)

The ability to hide how things really are? Got it. I am very well mannered in a sense and never reveal how I'm really feeling or what is really going on in my life. I find it very difficult to let anyone in.

I've always been very conscious of appearances. Always. Everything has to be "just right" or it won't work. I will change my clothes 6 times before leaving the house if something is not quite right. Going with that, I have to have certain things like my watch or a necklace. I cannot leave the house without my necklace... (I've also worn the same necklace for the last 4 years...)

I think it's obvious that I'm a writer. I used to write poetry. It all surrounded my feelings. Some of it has been published. I feel free when I write. I get lost in the worlds I make. I also draw. I love art. It's something the kiddo and I definitely share. I am also an actress. My first degree (BA) is in theater.

I guess that lets the cat out of the bag so to speak. To go back to the original question, why seek the answer from him? Validation in a world that has time and time again invalidated everything I have ever felt. Confirmation of what I know. The beginning of something to help make sense of my world.

For the last several years I have seen my son in me. It has been both eye-opening and comforting in many ways. I no longer wish to "see how he sees" because I realize now that I already do. As Mutha Lovin Autism said best: He is me. I am him.

Editor's Note: Before publishing this post I did send it to my family and Strike for them to read. I don't want to spring anything on anyone. As I expected, there were no surprises. I have also embraced my happy stimmy self which I'm sure is driving Strike nuts, but he needs to know what he's in for right? ;) I feel free. I feel happy. I feel better than I have in years.

Friday, September 6, 2013

When We Fall...

When a baby learns to talk... She babbles. She makes noise. She keeps babbling. She learns to talk.

When a toddler learns to walk... He falls. He gets up. He falls. He gets up. He learns to walk.

When a child learns to run... She trips. She falls. She gets up. She tries again. She learns to run.

When a child learns to ride a bike... He gets on. He falls. He gets on. He falls. He gets back on. He falls. He learns to ride.

You struggle. You learn. You experience heartbreak. You suffer disappointments. You get up. You dust yourself off. You continue on.

You sit in the office. You hear the words. "He has what we call Autism." You react.

You fall. You get up. You continue on.

You struggle teaching him to speak. To dress. To eat. To just call you "mom."

You fall. You get up. You continue on.

You sit helplessly as you watch your son rage against himself. He wants a new brain. He doesn't understand why it "doesn't work" the way people expect it to. Why can't he be like his friends at school? Why can't he understand what others do? He wants to die.

You fall. You get up. You continue on.

You find yourself holding him. He's raging. He's angry. He doesn't see you. He doesn't see his mom. You are there. But he doesn't see you. He sees anger. Upset. He surprises you with an amazingly powerful right hook to the cheek.

You fall. You cry. Your world shatters again.

What do you do?

What you do next defines you. It makes you. It breaks you.

What do you do?

Do you get up and try again?

Do you decide you've had enough and give in?

What would you do?

I see his frustration. I can see it in his eyes as he rages within trying to get a thought out.

I see him struggle to tell me an idea.

I see him fight to tell me how he feels.

I hear him rage verbally about his brain. He screams that he needs a new one. He doesn't understand why it "doesn't work" like he thinks it should. He beats his head with his fists, leaving scratches and bruises, trying to get it to "work."

I watch him struggle with who he is and the body he is in.

There is nothing I can do to make it better. Nothing I can do to help him make sense of it.

All I can do is hug him, tell him how much I love him, tell him he's perfect as he is, and duck.

I never knew just how much I would struggle as a mom. I cry more than I like to admit. I scream. I yell. I throw things. I totally lose my mind. I have nights where all I want is a drink so I can relax. I am constantly stressed. Constantly on my toes. Constantly in high gear.

I get hugged, kissed, scratched, hit, punched, snuggled, yelled at, smiled at, and gifted. All in one day. Sometimes all in the same hour.

And when I cry, I cry hard. Sometimes it's a single tear sliding silently down my cheek unnoticed, all the upset contained in that single drop. Sometimes it's the ugly cry locked in the bathroom.

When I crack, I crack hard.

But I do the only thing I know how to do.

Get up.

Dust myself off.

And continue on.

My baby is relying on me. He's the most precious gift I have.

Tomorrow is a new day.

We adjust. We adapt. We overcome.

**Editor's note: Whenever I do break down and lost my cool it is rarely in the kiddo's presence. I will leave the room. I will take him to Grandma's. I will do what I need to do to get a break and regroup. We all need a plan. What is yours?**

Sunday, September 1, 2013

Another School Year on the Books

So another school year has begun. I'm sort of over the whole 5th grade thing. Sort of. I'm working on it, I promise! It's just hard to believe that he's reaching middle school (it starts at 6th grade in our district).

Thus far it has gone off without a hitch. I kind of feel like it's the calm before the storm, but we shall see.

Last Monday I took the kiddo to go see his classroom. Due to some major shifting in the district his AS teacher got moved to a new classroom. In order to keep things flowing and have very few surprises on the first day we decided that he should definitely see the room before school started on Tuesday.

We get to the school and we stop to look at the class listings posted on the door. We knew who his gen ed teacher was going to be but I wanted to see who was in his room. I'm reading down through the list of names for him and I pause...

"Hey buddy, you are never going to believe who is in your homeroom!"
"Who?!"

I read her name, that sweet girl that is his 'girlfriend' that he made that Valentine for last year. He let out a yelp and grinned so big I thought his face would crack. He even started jumping around. He was so thrilled! I keep reading through the names and one of his friends, P, from the AS room is also in his class.

Perfect.

We walk on in and start looking for his new AS room. We find it with little effort and Mrs. L is waiting for him. They also have two new, young, male aides this year... (They looked like babies to me but in all fairness they are probably 22ish). Having these two young men in there should definitely be an asset to Mrs. L and her other lady aide, neither of whom are getting any younger. They are probably thrilled to have these young guys available to chase the kiddos.

But I'm getting off topic.

We head on down to the 5th grade pod to find his homeroom. He stops by the LS class and talks to his teacher there and starts talking his ear off about Minecraft. "Hey A, did you read this summer?" Silence. Haha! Like he read this summer.... :D  We then walk over to the other corner of the pod to his new homeroom.

His new teacher this year is one of those annoying bubbly types. The kind that you just want to smack at times... This is actually a good thing for him. He needs that bubbliness to keep him going. He finds his seat, his friend P is next to him and.... Yep. His cute little gf is sitting kitty corner to him.

If I thought he couldn't possibly get more excited, I was totally wrong....

Naturally I kept teasing him about whether or not he was going to pay attention in class or if he'd be too busy staring at her. Haha! ("Mom, you are NOT funny!")

The next morning I walked in with the kiddo, sat with him through breakfast as I always do the first day, and walked with him to his room. This year he gets to go straight to his homeroom to check in. (He used to check in at AS, leave his stuff, and then travel to homeroom for morning stuff.) We arrive at the room, he kisses and hugs me, and travels on in. His gf sees him, her face lights up, and she waves at him.

Ok, I have to pause here. I've seen this girl on and off for 5 years. She was in his 1st grade class. She is deadpan. I have NEVER seen her smile. In fact, Mrs. L and I had just been talking the day before about how no one ever sees her smile. Ever.

She SMILED for my kiddo, folks. She SMILED. MY KID has that affect on her.

Holy crap on toast.......

I need a minute to absorb this....

Ok. Moving on.

I get a note home that the kiddo had a great first day and remained excited all day long. Well of course! From what the aide told me at the end of the day he got to hang out with his gf and his friend P ALL DAY. Naturally he's excited! She also noted that she thinks someone is ready for 5th grade. Well, I'm glad someone is..... ;)

He had homework. Of course. Cause some things are just too good to be true. We had our usual homework battle. Let's face it though, who is ready for homework, and reading comprehension at that, on the first day of school? Not even I am ready for that. But we made it through.

This excitement stayed with him throughout the week when on Friday morning he told me, "Mom, I don't know if I can do this 5th grade thing." To which I told him of course he can! He has thus far, it will be great! In my usual whaddayatalkinabout kind of mom way. He kind of looked at me funny, kissed my cheek, and went on in to breakfast.

So a couple of other things happened this week that are pretty awesome too:

1. He's made me breakfast every single morning. A S'mores poptart, toasted, that he would put on a plate and leave next to my laptop with a little note.
2. He wore a Sonic shirt on Wednesday because his gf told him Tuesday that she likes Sonic. So he HAD to wear his for her. (This is HUGE!!!!) Reports are she loved it.
3. He took a bath every single time I asked him to, all on his own. I realize this shouldn't be big news, but if you've followed me for a while you'd know the hell I'd go through and the battle it was getting him into the tub.
4. He has woken up and gotten himself dressed every single day. I honestly wonder how long this will last and how long it will be before he's sleeping in and I'm dressing him as he sleeps.... But I'll take it while I can get it!
5. His Minecraft playing is down. Like so far down he's only playing maybe an hour a day. As in, in the car on the way to/from school. Honestly, I'm not even sure he played it yesterday or today as of yet. I can definitely live with this... (Although he does still really want the computer version, which he will likely get soon, but on my laptop where I can limit it better than I can on the desktop.)
6. I got him to take an unannounced, unscheduled, impromptu walk on the beach. Successfully.

Let's hope for a repeat next week! Hey, a girl can dream, right? :)



Wednesday, August 21, 2013

He's Growing Up....

My baby is growing up.

Sounds like a pretty obvious statement I know. He is starting 5th grade next week. He is 10 years old.

Over the summer we've been home every day together. Just doing what we do. I've had a first row seat to every thought, feeling, attitude, idea, and quirk to come his way.

I can see the changes.

Mental.

Emotional.

Physical.

It is quite easy to brush aside the mental and emotional changes. They are, after all, not very concrete. Just slips of whispers on the wind gliding by...

The physical changes are a bit harder. He's changing. His body is changing. He's going from my sweet little boy to a young  man.

Ten is a little too young, you think? Not so.

With every wrangled bath, every swipe of deodorant, every dark new hair, each independent new thought, every new inch he grows, I know.

It kind of makes me want to turn back the clock. Try to make up for all those times when I just "didn't have the time" to do so much with him when he was little. I want to embrace the little boy just a little more before I face the man he is becoming.

But I can't turn back time. I can't even slow time. I'm left to only live here in the present moment with him. Snuggling as long as he'll let me. Accepting his many kisses on the cheek. And loving the thoughtful polite little man he is turning out to be.

My mommy heart is breaking. But at the same time, it is bursting with the joy of seeing the amazing person he is turning out to be.

I am, beyond a doubt, one happy and proud mama.

Tuesday, July 16, 2013

He's a Kid!

It's not often I get angry at people. In fact I'm pretty easy going. I also don't often personally encounter people who are just plain ignorant or unable to understand. I don't often encounter people who view my child as being "less" somehow in comparison to NT children.

Often as parents of Autistics (even Autistics themselves!) we encounter some level of ignorance towards our children. It's usually something that, all irritation aside, we can brush off and move on.

It must be something in the air but I've seen so much of it that I have literally stopped dead in my tracks.

I've seen facebook postings and blog entries about people feeling uncomfortable around our kiddos in some way or another. On one level, I can understand that if you aren't sure of how to respond or interact.

Where I draw the line is people who question our judgement. And even I've been questioned recently.

Judgement on what? ANYTHING. I know my son. I know what he can handle. I know his life story. I know myself. I know what I am capable of. I know how to handle things. It's a skill that we learn to hone. Survival depends on it.

If I am comfortable with something, if I say "I've got this," then guess what? I've GOT this. We won't just talk out of our big toe and bluff. We don't have the time or the inclination. It isn't worth the effort.

It's an insane little poetic irony, really. For example, one could trust my judgement on everything. Literally everything. Business, personal, whatever. But suddenly, when my son comes in the picture, my judgement isn't worth trusting?

A wee bit hypocritical no?

I have to say, I'm not too happy with this. How could any of us be? What is it about being Autistic that makes people pause? What is it that makes people suddenly think they aren't as capable as NT children (or adults)? What is it that makes them seem like alien creatures that are not capable of at least basic functioning?

Guess what folks?

He plays the same games your kids do (and is extremely good at it): Minecraft, Mario Brothers, Sonic, Pac Man, Angry Birds, Bad Piggies (which he beat in less than a week).

He loves to play on the playground and go to the beach.

He loves to swim. (I know, I just burst your "but Autistics don't swim!" bubble. You'll live.)

He loves being on the water (he spent the first couple years of his life on a sailboat and still goes out on boats that family has, even canoes).

He loves to watch movies and TV shows. Granted he probably watches a little more Animal Planet and National Geographic Wild than your average kiddo (his aunt was a zookeeper for years), but he loves Fairly Odd Parents, Penguins of Madagascar, Fraggle Rock, the Madagascar movies, the Ice Age movies, Muppets, America's Funniest Videos, Wipeout... The list goes on!

He loves to read! Good lord can this kid read too.... I have more books in this house than I have shelves to put them on.

He loves to draw and create. He's written 5 chapter books to date and he has more in his head to write. He's constantly drawing and molding with clay. He is extremely detailed in everything he creates. He draws every single day.

He does chores, like, real responsible chores. He empties the dishwasher and feeds the cats. He cleans up his toys. Heck, he can even feed himself breakfast and lunch. He just started learning to cook on the stove!

He's in the same class as your kid. Yep, included right on in, successfully! They help him, they play with him, they include him!

He's always thinking. Always crafting. Always developing. Give him a challenge, he'll meet it. I guarantee you.

Well, golly gee... He is... Well... A kid!

They all are!

Do we have to take special considerations? Sure. We have to be mindful of the environment. Who isn't? We have to pay attention to schedules and routines. Who doesn't like predictability? We have headphones for when noises become too much. Makes sense. We are trying out a weighted blanket, mostly to ground him so he can sleep. Honestly, I'd use the thing too! Yes, we recently added a swing into my living room. It gives him the sensory input he needs to be calm and focus. Who doesn't like to  swing or sit in a rocking chair?

Yes, we have to be more hyper-vigilant. We are forced to be more aware. It tends to make us look like helicopter parents. But that doesn't make my son less of a kid.

So explain to me again how my kid is so... "different"? How is he "less"? If kids can include him, why can't you?

And because everyone loves pictures:









Thursday, June 13, 2013

Blessed

We've been so blessed by the people in our lives. Often these people go unsung. You've heard me rave about how awesome my mom is, or my sister, and more recently, M - my fiance.

So in light of Father's Day coming up I wanted to stop and appreciate the men in my life, of which there are three stand-outs so to speak. As in, they are the most important. They are listed in chronological order of appearance. ;)

As you all know, Sparky's (the kiddo, it's easier to call him by something, so a nickname it is!), well, his dad is not around (his choice really). After his outburst when Sparky was 2 about him being "retarded" I quickly washed my hands of that mess. Growing up without my father I knew such a person was overrated anyway. My dad was no winning soul. In fact, I'm pretty sure I am better for not having to deal with him.

Oh no! You cry... How could he (or you) survive without a father or some type of father figure?

Well, for starters, I ended up gaining this pretty stand up guy for my stepdad.

Not anyone could come into a house with a woman and her three growing daughters. Talk about nerves of steel.... My sisters and I, well, we were something of a handful (I'm a middle child, go with that where you will). We'll argue who was worst (the youngest I say!) but all in all, we were quite the trio. He came into this mess, with two kids of his own (b/g, both younger than us), persisted like crazy to get my mom to marry him, and did a pretty decent job of being around. You can imagine that with 5 pretty active kids that there would be a lot to keep up with. He managed to. I get lost keeping up with my one and only Sparky, I can't imagine 5! We all turned out pretty good, if I do say so myself. Sparky and I lived with my parents while I finished college with my first degree until Sparky was 3. Then we moved out. Today my dad (as I often refer to him) is the proud grandpa of 3 grandkids (Sparky is first, then Z, then Ladybug) that he spoils as best he can. While my little sister has been out of high school for nearly a decade, Grandpa's youngest (g) just graduated. His 'nest' is now empty. More time to spoil the grandkids!

Then there is this other guy, a little known guy, a guy who was (and still is) an important figure in Sparky's life. You may recall references to a random guy, R. We'll call him by a nickname, Ears (long story). I have known him for nearly 20 years (man, that makes me feel old!). He's been my best friend for ages. When Sparky was 2, he came home from Iraq (he was there for about 2 years as a Marine). He visited me at college and (as I say) I haven't been able to get rid of him since! We were together for 5 years. During that time he was such a blessing and pillar of support as I finished my (first) degree and went through getting Sparky's Autism diagnosis.  That was a rough period for sure, just trying to get answers and help. Ears stood with us through it all. As Sparky grew and went to school he started noticing his classmates had this guy in their life. This guy who was with mom and did certain things with and for their kids. Something clicked in his head, he put 2 and 2 together and determined that Ears was his dad. To this day he calls him dad intermittently.  If he sees something that refers to "dad" he thinks of Ears. We have never told him otherwise and really, it doesn't matter. Ears is dad to this kid. To this day Ears and I remain close (and yes M knows and is totally ok with this). I still rely on him for support. There's a lot of history and mutual respect there. I'm sure I'd have lost my mind long ago if it wasn't for him. Even at 2am. Sparky even emails him on occasion and loves having that avenue open to him. Ears considered Sparky his own and I know he does to this day. He would do anything for that kiddo...

Now there's M. I'm going to call him Strike. (He was an Army Ranger before getting hit by lightning. True story.) A dad himself of two absolutely adorable kiddos (4/g and 7/b). Kids he lives for. Being a dad is just in his blood. People always comment on how great he is with them and how he has so much patience. I hear that a lot, "He has such amazing patience!" Yeah. I get it. I have very little. I know. He has a lot. Thanks for reminding me... :) There was a time when I actually was very resistant to him.  I know how hard my son is. I've lost relationships over it. But man, Strike PERSISTED.  He wouldn't leave me be. He kept calling and texting and working his butt on in. I eventually gave in... ;)  He is really good with Sparky though. There are days when I'm just about at the end of my rope but he is no where near it. There are days I can't figure out just what it is Sparky is trying to tell me and he gets it right off the bat. (I'm a little jealous of this... :) ) I saw it right away when I met him. Right away. When Sparky had his first meltdown when Strike was watching him and Strike didn't bat an eye. I knew. When Sparky screams his way through each and every haircut that he gets and Strike doesn't bat an eye. I know. When Sparky is up at 3am, in my bed, talking and wiggling around, and Strike doesn't even peep (aside from the occasional answer to Sparky). I know. When Sparky is absolutely losing his mind over whatever and breaking eardrums. I know. When Sparky tells him how he can't marry me and he needs to go away, and Strike tells him too bad cause he's here to take care of him and his mom. I know. Every other guy (except Ears) has run from it. This kid is a LOT of work. He's a lot of frustration. He is a lot to deal with. He isn't easy. Strike just shrugs it off and keeps going. He knows. He understands. He's resilient. He's patient. Damn I'm blessed!

Without these three guys I'd probably be lost. I am very lucky to have them. I'm even luckier that they want to be around. So while I have mixed emotions about Father's Day (you can read about it here), all in all, I'd say we are truly blessed.


Sparky and Grandpa:





Sparky and Ears:




Sparky and Strike:





Yep. Blessed. :)